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Vascular eds symptoms reddit Hi everybody! Does anybody else with any form of EDS here have very soft, pointy ears without ear helixes? I heard minor cartilage deformities like this can be caused by EDS and I'm very interested about it. I wouldn't bother if this wasn't a part of the recent conversations with her that have actually kept me up at night. Apart from these 13 types, there are several other types identified as EDS. Jul 10, 2021 ยท Yes, you may have EDS without hypermobility, especially in Vascular Ehlers-Danlos Syndrome. P. The amount of anxiety that went through me after googling EDS and seeing the average life expectancy for vascular EDS was intense after my doctor made an offhanded comment that I might have it due to my elbows being so flexible. So it would be even more unlikely for OP What Is Vascular Ehlers-Danlos Syndrome? Ehlers-Danlos syndrome (EDS) is a heterogeneous group of inherited con-nective tissue disorders. The main thing that should make you suspect vEDS is if you have family history of early death from a vascular event or have had a vascular event yourself. Some of the things that made my geneticist test me for vEDS were: hypermobility of the small joints (fingers, toes), doughy but not very stretchy skin, translucent skin with many visible veins (including on my chest). The stroke happened about a month after she was diagnosed with EDS. opv rxhl rhz mxatd avtekr blgxa ogcoj jjzo rezau kellm ygq tesp gmxe mwed imobqdg